Resources

Canadian Institute of Health Research (CIHR)

Welcome to the Canadian Institutes of Health Research - CIHR

Canada Public Health Association (CPHA)

Canadian Public Health Association

Alberta Clinical Research Consortium (ACRC)

Alberta Clinical Research Consortium (ACRC) - Alberta Innovates

A pRoject Ethics Community Consensus Initiative (ARECCI)

A pRoject Ethics Community Consensus Initiative (ARECCI) - Alberta Innovates

Check out their decision support tool on if a research project would require REB review. ARECCI - The Alberta Innovates Ethics Screening Tool

Levels of Influence on health Resources

1. Spheres of influence and strategic advocacy for equity in medicine

   • Karches, K., DeCamp, M., George, M., Prochaska, M., Saunders, M., Thorsteinsdottir, B., &  ​         Dzeng, E. (2021). Spheres of influence and strategic advocacy for equity in medicine.              Journal of General Internal Medicine, 36(11), 3537-                                                          3540. https://doi.org/10.1007/s11606-021-06893-4

2. The health equity framework: A science- and justice-based model for public health researchers and practitioners.

   • Peterson, A., Charles, V., Yeung, D., & Coyle, K. (2021). The health equity framework: A                   science- and justice-based model for public health researchers and practitioners. Health             Promotion Practice, 22(6), 741-                                                                                       746. https://doi.org/10.1177/1524839920950730

3. Social determinants and health behaviors: Conceptual frames and empirical advances.

   • Short, S. E., & Mollborn, S. (2015). Social determinants and health behaviors: Conceptual                 frames and empirical advances. Current Opinion in Psychology, 5, 78-                                   84. https://doi.org/10.1016/j.copsyc.2015.05.002​

Asthma and multiple level of care resources

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1. Acuity of asthma exacerbations in Alberta, Canada is increasing: A population-based study.

   • Adatia, A., Moolji, J., & Satia, I. (2024). Acuity of asthma exacerbations in Alberta, Canada is            increasing: A population-based study. Allergy, Asthma & Clinical Immunology, 20(13).              https://doi.org/10.1186/s13223-024-00872

2. Association between medication adherence and risk of COPD in adult asthma patients: A retrospective cohort study in Canada.

   • Asamoah-Boaheng, M., Farrell, J., Bonsu, K. O., Oyet, A., & Midodzi, W. K. (2022).                        Association between medication adherence and risk of COPD in adult asthma patients:              A retrospective cohort study in Canada. Clinical Epidemiology, 14, 1241–1254.                    https://doi.org/10.2147/CLEP.S370623

3. The determination of health across the life course and across levels of influence.

   • Galea, S. (2015, May 31). The determination of health across the life course and across levels            of influence. Boston University School of Public Health.                                                        https://www.bu.edu/sph/news/articles/2015/the-determination-of-health-across-the-              life-course-and-across-levels-of-influence-2/

4. Promoting cardiovascular health in the developing world: A critical challenge to achieve global health.

   • Institute of Medicine. (2010). Promoting cardiovascular health in the developing world: A                    critical challenge to achieve global health.                                                                        http://www.iom.edu/Reports/2010/Promoting-Cardiovascular-Health-in-the-                         Developing-World-A-Critical-Challenge-to-Achieve-Global-Health.aspx

5. Inhaler resources

   • LungSask. (2022). Inhaler resources. https://www.lungsask.ca/lungs/programs-                              support/inhaler-resources     

6. A systematic review of psychological, physical health factors, and quality of life in adult asthma.

   • Stanescu, S., Kirby, S. E., Thomas, M., et al. (2019). A systematic review of psychological,                physical health factors, and quality of life in adult asthma. npj Primary Care Respiratory              Medicine, 29(37). https://doi.org/10.1038/s41533-019-0149-3

Indigenous peoples and Health in Canada

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1. What do they really mean by partnerships? Questioning the unquestionable good in ethics guidelines promoting community engagement in Indigenous health research.

   • Brunger, F., & Wall, D. (2016). What do they really mean by partnerships? Questioning the              unquestionable good in ethics guidelines promoting community engagement in                        Indigenous health research. Qualitative Health Research, 26(13), 1862-1877.                        https://doi.org/10.1177/1049732316649158

2. Advancing Indigenous medical education.

   • Clark, W. (2022, April 19). Advancing Indigenous medical education [Video]. University of              Alberta. https://www.ualberta.ca/en/medicine/about/social-                                            accountability/globalhealth/rounds/wayne-clark.html

3. Indigenous health research inclusion

   • Clark, W. (2023, September 6). Indigenous health research inclusion [Slide deck]. University of          Alberta, shared with permission.

4. Deficit-Based Indigenous Health Research and the Stereotyping of Indigenous Peoples.

   • Hyett, S., Gabel, C., Marjerrison, S. & Schwartz, L. (2019). Deficit-Based Indigenous Health             Research and the Stereotyping of Indigenous Peoples. Canadian Journal of Bioethics /               Revue canadienne de bioéthique, 2(2), 102–109.                                                             https://doi.org/10.7202/1065690ar

5. 'No consequences' for violating human rights in privately funded research in Canada, says ethics expert.

   • Leo, G. (2024, December 2). 'No consequences' for violating human rights in privately funded            research in Canada, says ethics expert. CBC News. Retrieved from                                        https://www.cbc.ca/news/canada/saskatchewan/ethics-research-canada-privately-              funded-1.7393063

6. Dr. Wayne Clark, University of Alberta, on Accelerating Clinical Trials (ACT) Canada consortium 

   • Population Health Research Institute. (2023, January 20). Dr. Wayne Clark, University of                       Alberta, on Accelerating Clinical Trials (ACT) Canada consortium [Video]. YouTube.                   https://www.youtube.com/watch?v=3Ym6hLk3fGU

7. Potential class-action lawsuit pits Indigenous community against Halifax researchers.

   • Rhodes, B. (2021, December 13). Potential class-action lawsuit pits Indigenous community                   against Halifax researchers. CBC News. Retrieved from                                                       https://www.cbc.ca/news/canada/nova-scotia/possible-class-action-indigenous-                   community-dal-researchers-1.6281122​​​​

Additional Marginalized Groups in Health Research

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1. Public Health Service study of untreated syphilis at Tuskegee and Macon County, AL

• Centers for Disease Control and Prevention. (2023, July 10). Public Health Service study of                 untreated syphilis at Tuskegee and Macon County, AL. David J. Sencer CDC Museum.             https://www.cdc.gov/museum/online/story-of-cdc/tuskegee/index.html

2. Enabling the participation of marginalized populations: Case studies from a health service organization in Ontario, Canada.

• Montesanti, S. R., Abelson, J., Lavis, J. N., & Dunn, J. R. (2017). Enabling the participation of             marginalized populations: Case studies from a health service organization in Ontario,             Canada. Health Promotion International, 32(4), 636–649.                                                 https://doi.org/10.1093/heapro/dav118

3. Inclusion of marginalized groups and communities in global health research priority-setting.​

• Pratt, B. (2019). Inclusion of marginalized groups and communities in global health research               priority-setting. Journal of Empirical Research on Human Research Ethics, 14(2), 169-               181. https://doi.org/10.1177/1556264619833858

4. Knowledge of the Tuskegee study and its impact on the willingness to participate in medical research studies.

• Shavers, V. L., Lynch, C. F., & Burmeister, L. F. (2000). Knowledge of the Tuskegee study and               its impact on the willingness to participate in medical research studies. Journal of the               National Medical Association, 92(12), 563–572.

The Future of Health Care:
Genetic Information and Technology

1. Where is genetic medicine headed? Exploring the perspectives of Canadian genetic professionals on future trends using the Delphi method.

• Borle, K., Kopac, N., Dragojlovic, N., et al. (2022). Where is genetic medicine headed?                Exploring the perspectives of Canadian genetic professionals on future trends using the            Delphi method. European Journal of Human Genetics, 30(5), 496–504.                              https://doi.org/10.1038/s41431-021-01017-2

​​​2. Public attitudes towards genomic data sharing: results from a provincial online survey in Canada.

• Etchegary, H., Darmonkov, G., Simmonds, C. et al. (2023). Public attitudes towards genomic            data sharing: results from a provincial online survey in Canada. BMC Med Ethics 24,              81. https://doi.org/10.1186/s12910-023-00967-0

3. Literature on wearable technology for connected health: Scoping review of research trends, advances, and barriers.

• Loncar-Turukalo, T., Zdravevski, E., Machado da Silva, J., Chouvarda, I., & Trajkovik, V.                      (2019). Literature on wearable technology for connected health: Scoping review of                research trends, advances, and barriers. Journal of Medical Internet Research, 21(9),              e14017. https://doi.org/10.2196/14017

4. Enabling health technology innovation in Canada: Barriers and facilitators in policy and regulatory processes.

• MacNeil, M., Koch, M., Kuspinar, A., Juzwishin, D., Lehoux, P., & Stolee, P. (2019). Enabling           health technology innovation in Canada: Barriers and facilitators in policy and                       regulatory processes. Health Policy, 123(2), 203-214.                                                       https://doi.org/10.1016/j.healthpol.2018.09.018

5. Health Information Act Public Engagement Survey: Topline Report.

• Office of the Information and Privacy Commissioner of Alberta. (2024). Health Information Act             Public Engagement Survey: Topline Report. https://oipc.ab.ca/wp-                                      content/uploads/2025/02/OIPC-HIA-Public-Engagement-Survey-Topline-Report.pdf

6. What happens to your DNA data now that 23andMe has filed for bankruptcy?

• Stechyson, N. (2025, March 25). What happens to your DNA data now that 23andMe has              filed for bankruptcy? CBC News. https://www.cbc.ca/news/business/23andme-                data-security-1.7492589